National Organization for Rare Disorders, Inc.

Spasmodic Torticollis

Important
It is possible that the main title of the report Spasmodic Torticollis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• Spasmodic Wryneck
• Torticollis
• Idiopathic Cervical Dystonia
• ICD
• Cervical Dystonia

Disorder Subdivisions

• Tonic Spasmodic Torticollis
• Clonic Spasmodic Torticollis
• Mixed Tonic and Clonic Torticollis

General Discussion

Spasmodic Torticollis, also known as cervical dystonia, is a form of dystonia characterized by intermittent spasms of the neck muscles resulting in involuntary rotation and tilting of the head. These movements are frequently painful. There are three different varieties of the disorder: tonic, causing sustained turning of the head to one side; clonic, causing shaking movements of the head; and mixed tonic and clonic, involving both kinds of movements. The exact cause of this disorder is usually unknown, and it tends to appear in adults.

Resources

WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
USA
Tel: 2128758312
Fax: 2128758389
Email: wemove@wemove.org
Internet: http://www.wemove.org

Dystonia Medical Research Foundation
1 East Wacker Drive
Suite 2430
Chicago, IL 60601-1905
United States
Tel: 3127550198
Fax: 3128030138
Tel: 8003773978
Email: dystonia@dystonia-foundation.org
Internet: http://www.dystonia-foundation.org

National Spasmodic Torticollis Association
9920 Talbert Avenue
Fountain Valley, CA 92708
Tel: (714)378-7837
Fax: (714)378-7830
Tel: (800)487-8385
Email: NSTAmail@aol.com
Internet: http://www.torticollis.org

National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda, MD 20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Email: braininfo@ninds.nih.gov
Internet: http://www.ninds.nih.gov/

Dystonia Society
1st Floor Camelford House
Albert Embankment
London, Intl SE1 7TP
United Kingdom
Tel: 0845 458 6211
Fax: 0845 458 6311
Tel: 0845 458 6322
Email: admin@dystonia.org.uk
Internet: http://www.dystonia.org.uk

Spasmodic Torticollis Dystonia, Inc
PO Box 28
Mukwonago, WI 53149
Tel: (262)560-9534
Fax: (262)560-9535
Tel: (888)445-4588
Email: info@spasmodictorticollis.org
Internet: http://www.spasmodictorticollis.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  3/27/2008
Copyright  1986, 1987, 1990, 1991, 1993, 1996, 1998, 1999, 2000, 2001, 2002, 2007 National Organization for Rare Disorders, Inc.

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