Tethered Spinal Cord Syndrome

Important
It is possible that the main title of the report Tethered Spinal Cord Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Congenital Tethered Cervical Spinal Cord Syndrome
Occult Spinal Dysraphism Sequence
Tethered Cervical Spinal Cord Syndrome
Tethered Cord Malformation Sequence
Tethered Cord Syndrome

Disorder Subdivisions

None

General Discussion

Tethered Spinal Cord Syndrome is a disorder characterized by progressive neurological deterioration that results from compression of the lowermost bundle of nerves of the spinal cord (cauda equina). It is most commonly associated with a defective closing of the neural tube (precursor of the spinal column) during embryonic development (Spina Bifida).

Resources

Spina Bifida Association of America
4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226
Tel: (202)944-3285
Fax: (202)944-3295
Tel: (800)621-3141
Email: sbaa@sbaa.org
Internet: http://www.sbaa.org

International Federation for Spina Bifida and Hydrocephalus
Attn. Els De Clercq
Cellebroersstraat 16
B-1000
Brussels, B1000
Brussels
Email: info@ifglobal.org
Internet: http://www.ifglobal.org

National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda, MD 20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Email: braininfo@ninds.nih.gov
Internet: http://www.ninds.nih.gov/

Spina Bifida and Hydrocephalus Association of Canada
#977-167 Lombard Avenue
Winnipeg, Manitoba, R3B 0V3
Canada
Tel: 204-925-3650
Fax: 204-925-3654
Tel: 800-565-9488
Email: spinab@mts.net
Internet: http://www.sbhac.ca

Birth Defect Research for Children, Inc.
930 Woodcock Rd
Suite 225
Orlando, FL 32803
USA
Tel: 4078950802
Fax: 4078950824
Email: staff@birthdefects.org
Internet: http://www.birthdefects.org

American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows, IL 60008-3852
Tel: (847)378-0500
Fax: (847)378-0600
Tel: (888)566-2267
Email: info@aans.org
Internet: http://www.NeurosurgeryToday.org and http://www.AANS.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 9/10/2007
Copyright 1990, 1999, 2007 National Organization for Rare Disorders, Inc.

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