Cystic Fibrosis

Other Places To Get Help

Organizations

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD  20814
Phone:	1-800-FIGHT CF (1-800-344-4823) (301) 951-4422
Fax:	(301) 951-6378
E-mail:	info@cff.org
Web Address:	www.cff.org
This organization coordinates, supports, and accredits cystic fibrosis centers nationwide and provides funds and support for research.
Cystic Fibrosis Research
Bayside Business Plaza
2672 Bayshore Parkway
Suite 520
Mountain View, CA  94043
Phone:	(650) 404-9975
Fax:	(650) 404-9981
Web Address:	www.cfri.org
This organization funds research, provides educational and personal support, and spreads awareness about the genetic condition of cystic fibrosis. It also offers information and referrals to families living with cystic fibrosis.
Cystic Fibrosis Worldwide
210 Park Avenue
Suite 267
Worcester, MA  01609
Phone:	(508) 733-6120
E-mail:	info@cfww.org
Web Address:	www.iacfa.org
Cystic Fibrosis Worldwide (CFWW) promotes access to appropriate care and education to people around the world who have cystic fibrosis or who know someone with cystic fibrosis. CFWW works to provide a means to exchange information, research, and support the search for a cure. The Web site lists a variety of links to other cystic fibrosis organizations.
KidsHealth for Parents, Children, and Teens
4600 Touchton Road East, Building 200
Suite 500
Jacksonville, FL  32246
Phone:	(904) 232-4100
Fax:	(904) 232-4125
E-mail:	comments@kidshealth.org
Web Address:	www.kidshealth.org
This Web site sponsored by Nemours Foundation provides a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This Web site offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly e-mails about your area of interest.

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Author:	Debby Golonka, MPH	Last Updated: June 26, 2007
Medical Review:	Michael J. Sexton, MD - Pediatrics Susanna McColley, MD - Pediatric Pulmonology
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