Cystic Fibrosis
When To Call a Doctor
It is important to diagnose and treat cystic fibrosis early. Call your doctor if your child:
- Has frequent lung infections (pneumonia), colds, an ongoing cough, shortness of breath, or wheezing.
- Coughs up mucus that contains blood.
- Does not gain or maintain weight.
- Has smelly, large, greasy stools or diarrhea.
- Has salty-tasting skin or sweat.
- Tires easily during activity.
- Has rounded, flat fingertips (clubbing).
Call your doctor if your child who has been diagnosed with cystic fibrosis gets worse in any way. Typically, this is when your child:
- Has increased coughing or has a cough that is getting worse.
- Has new wheezing or has wheezing that is getting worse.
- Has more trouble breathing than usual.
- Has lost weight or is not gaining weight, without an explanation.
- Is having symptoms that you and your doctor have discussed as being more serious problems.
Watchful Waiting
Watchful waiting is a period of time during which you and your doctor observe your child's symptoms without using medical treatment. Watchful waiting is not a good idea for people who have cystic fibrosis. If your child has any signs of cystic fibrosis, even if they seem to be mild, see your doctor right away.
Who To See
The following health professionals can diagnose and treat cystic fibrosis:
Other health professionals may also be involved in your child's care:
- Respiratory therapist
- Physical therapist
- Registered dietitian
- Exercise physiologist
- Social worker
- Psychologist
- Pharmacist
Cystic fibrosis multidisciplinary specialist centers offer the best, most comprehensive treatment available by addressing the medical, nutritional, and emotional needs of people who have cystic fibrosis. There are more than 100 of these centers in the United States. You can locate one by contacting the Cystic Fibrosis Foundation.
To prepare for your appointment, see the topic Making the Most of Your Appointment.
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| Author: | Debby Golonka, MPH | Last Updated: June 26, 2007 |
| Medical Review: | Michael J. Sexton, MD - Pediatrics Susanna McColley, MD - Pediatric Pulmonology | |
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